Just for You, Mom 💝
The Bottom Line
- 🛡️ You're safe with good doctors and nurses
- 💪 Your body is working hard to heal
- 👨👩👧 We're all here with you
- 🌈 You're going to get through this
Your Simple To-Do List
Just Breathe
Notice your breath - in... out...
Rest When Tired
Sleep is medicine
Let Us Help
Just be - we're here
Notice One Good Thing
A comfortable pillow, a kind nurse
You're Loved
You're Strong
You're Not Alone
Your Assignment Right Now
Take three slow breaths
That's it. That's all I'm asking.
For Dad - The Full Picture 📋
Quick Summary (Read This First)
Mom's Current Status
🏥 Critical but stable in ICU
💨 Severe respiratory distress
🩺 Post-intervention autoimmune response
Primary Challenge
Oxygen saturation ~75% on high-flow oxygen
Emergency Contacts
ICU Nurse's Station
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Social Work
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Patient Advocate
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Part 1: Current Situation
The Three Interconnected Problems
Immune System Dysregulation
Autoimmune-type response where immune system is confused
Respiratory-Digestive Coordination
Coughing/shortness of breath after eating
Post-Intervention Inflammation
Severe inflammatory response triggered by treatment
Mom's Current Medical Status
📊 Critical but stable in ICU
💨 Oxygen saturation: ~75% on high-flow oxygen
🩺 High-flow nasal cannula support
Part 2: Treatment & Support
Integrated Healing Approach
Evidence-Based Mind-Body Support
- 🌬️ Guided Breath Awareness
- 🎵 Therapeutic Sounds (40Hz & 90Hz)
- 👨👩👧 Family Presence as Therapy
Nutritional Support
Safe Resources Available
🥗 Anti-inflammatory principles
🏃 Small, frequent meals
Part 3: Finding Help & Information
Local Specialist Research
Verified directories and trusted sources for finding specialists in complex autoimmune and respiratory cases.
Safe Research Practices
- 🏥 Mass General Brigham
- 🎯 How to navigate medical information safely
Key Doctors & Centers
New England Specialists
Mass General Hospital
Dr. Zachary J. Wallace - Rheumatology/Immunology
Brigham and Women's Hospital
Dr. David M. Systrom - Pulmonary/Critical Care
Safe Research Guide
When looking for more information, it's vital to use reliable sources. The documents recommend this hierarchy:
- Top Tier (Most Reliable): Government and research portals (.gov, .edu)
- National Institutes of Health (NIH)
- PubMed (NIH database)
- Harvard Health Publishing
- Mayo Clinic
- Trusted Organizations (.org):
- American Thoracic Society
- American Lung Association
- Society of Critical Care Medicine
- Search Tool: ClinicalTrials.gov - To search for ongoing clinical studies
Complete Documents (PDFs)
These are the complete research documents. Click to open them (will work if this page is in the same folder as the PDFs).
📄 Appendix B - External Resources & Doctors in MA.pdf 📄 Leading New England Physicians for Post-COVID and Related Syndromes.pdf 📄 Researching Threshold Practices for Critical Care.pdf